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Wednesday, September 7, 2016 - Medical Awareness

While media provides excellent coverage to increase our awareness of and fundraising for certain "high-profile" diseases, this same media typically avoids covering many other common and serious diseases.  For example, diseases that have an average 99% fatality and effect more than 1/2500 births.  Our angel was diagnosed with a severe and fatal form of Turner Syndrome. She fought a hard battle for life which she ultimately lost at 16 weeks 6 days.  Nova Tori Biggs was born sleeping at 7:26 am August 9, 2016. Our beautiful granddaughter weighed just 129g.    We do the Buds and Butterflies walk in her memory. 

posted in General at Wed, 07 Sep 2016 09:00:30 -0600

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